Autism Assessment Waiting Guide

Are you waiting for an autism assessment?

Here’s a practical resource guide & checklist that you can use while waiting for an autism assessment.

1.  Understanding the Process

• Find out how long the wait list is (ask your GP, clinic, or provider).

• Ask what the assessment will include (interviews, questionnaires, observations).

• Note down who to contact if your circumstances change (e.g., worsening mental health, school crisis).

• Keep a folder (digital or paper) for forms, school reports, medical history, and personal notes.

  
  

2.  Learning About Autism

• Read about autism from reliable sources (e.g., NHS, National Autistic Society, Autism Self Advocacy Network).

• Explore how autism can look different in girls, women, and adults.

• Learn about strengths and differences (not just challenges).

• Follow autistic voices on social media or blogs to hear lived experience.

  
  

3.  Daily Strategies While Waiting

• Try sensory-friendly adjustments (ear defenders, soft clothing, quiet spaces).

• Use visual schedules, timers, or planners to reduce overwhelm.

• Practice communication supports (clear language, written notes, AAC apps if helpful).

• If in school/work: ask for reasonable accommodations (quiet workspace, flexible deadlines, sensory breaks).

• Keep a journal of patterns, triggers, and supports that help — this can also help with assessment.

  
  

4.  Support Networks

• Join a local autism or neurodiversity group (many offer online support too).

• Reach out to charities/helplines (e.g., National Autistic Society helpline, local mental health services).

• Connect with parent/carer forums if supporting a child.

• Explore online communities (Reddit r/Autism, Facebook groups, Discord servers).

  
  

5.  Emotional Wellbeing

• Remind yourself (or your child) that waiting does not invalidate experiences.

• Seek therapy or counselling if anxiety or low mood worsens.

• Try mindfulness, grounding, or relaxation exercises.

• Find safe spaces for self-expression (journaling, art, hobbies, gaming).

• Celebrate strengths and achievements, not just challenges.

  
  

6.  Emergency & Crisis Options

• Know who to call if things worsen (e.g., GP, crisis helpline, 999 if unsafe).

• Save emergency contacts in your phone.

• Talk with school/workplace about temporary support if difficulties escalate.

  
  

 Key message: You don’t have to wait until diagnosis to access strategies, support, and community.