Post-Diagnosis Action Plan (First Year)

This is a suggested plan that some people may find helpful. You can change things to make it your own.

This way, you’re not overwhelmed with everything at once — instead, it’s staged, practical, and gives you “next steps” at each point.

Step 1: Immediate Actions (First 1–2 Months)

• Request written diagnostic report from the clinic/NHS service.

• Ask for a post-diagnostic information pack (many NHS trusts or autism charities provide these).

• Register with your local autism hub, support group, or parent/carer network.

• If it’s a child:

  • Inform the school and request a meeting with the SENCO.

  • Ask about support via SEN Support or an EHCP assessment if needs are significant.

• If it’s an adult:

  • Notify your workplace (HR or line manager) and request reasonable adjustments under the Equality Act 2010.

Step 2: Building Support (Months 2–4)

• Book referrals if relevant:

  • Speech and Language Therapy (SLT) for communication.

  • Occupational Therapy (OT) for sensory/daily living skills.

  • Mental health support (e.g. autism-adapted CBT if anxiety/depression present).

• Enrol in a parent/carer training course (e.g. EarlyBird, Cygnet, or NAS workshops).

• Create a profile or passport (“This Is Me” sheet) for school/work — outlining strengths, challenges, sensory needs, and communication preferences.

• Introduce visual supports, routines, or assistive tech at home/workplace.

Step 3: Daily Life & Environment (Months 4–8)

• Trial sensory strategies: ear defenders, weighted lap pads, sensory breaks, fidget tools.

• Implement visual timetables/checklists to support transitions and organisation.

• Encourage self-advocacy skills (practicing how to say what helps or what is difficult).

• At school: work with teachers on clear goals (academic, social, emotional).

• At work: review adjustments after a few months — what’s helping, what isn’t?

Step 4: Longer-Term Supports (Months 8–12)

• Review progress with school SENCO or workplace manager/HR.

• If progress is slow or needs are high:

  • For children → apply for an EHCP.

  • For adults → explore Access to Work funding for extra support (e.g. job coach, equipment).

• Build in peer support opportunities:

  • Children → autism-friendly clubs, supported playdates, interest-based groups.

  • Adults → autistic peer groups, online forums, community groups.

• Begin planning for the next stage of development (e.g. school transition, further education, employment pathways).

Guiding Principles

• Focus on strengths and interests, not just challenges.

• Keep communication with school/workplace regular and collaborative.

• Revisit supports every few months — needs can change over time.

• Connect with autistic adults and advocacy groups for lived-experience insights.