Support While Waiting for an Autism Assessment (UK)

1.  Healthcare & NHS Support

• GP: Can check in on wellbeing, prescribe treatment for anxiety/depression, and refer to interim services.

• CAMHS (for children/teens): Support may be available for mental health even without an autism diagnosis.

• Therapies (availability varies by area):

  • Speech & Language Therapy (communication support)

  • Occupational Therapy (sensory and daily living skills)

  • Mental health services (CBT, counselling – ask for autism-informed therapists if possible).

Tip: Emphasise needs rather than waiting for diagnosis — many services are needs-based.

2. Education Support (Children & Young People)

• Schools must support children with additional needs even without a diagnosis.

• Ask the SENCo (Special Educational Needs Coordinator) for adjustments, e.g.:

  • Quiet or sensory-friendly spaces

  • Visual timetables

  • Extra time in exams

  • Social skills support

• SEND Support: Schools should provide help as part of “graduated response” (assess, plan, do, review).

• EHCP (Education, Health & Care Plan): Can be applied for without a diagnosis if needs are significant.

3. Adult Support & Workplace Rights

• Under the Equality Act 2010, you don’t need a formal diagnosis to request “reasonable adjustments” at work.

• Examples:

  • Flexible hours

  • Quiet workspace

  • Clear written instructions

  • Remote working options

• Access to Work (DWP scheme): Can provide funding for equipment, job coaching, or travel support – no diagnosis required.

• University students: Can apply for Disabled Students’ Allowance (DSA) while awaiting assessment.

4.  Community & Charitable Support

• National Autistic Society (NAS): Helpline, support groups, and advice.

• Ambitious about Autism (children/young people).

• Autism Alliance UK – network of charities.

• Contact – support for families with disabled children.

• Local parent/carer groups (often found via council or Facebook).

• Peer support: online forums (NAS Community, Reddit r/AutismUK, Autistic-led Discord groups).

5.  Practical Strategies You Can Use Now

• Sensory supports: ear defenders, fidget tools, weighted blankets, dimmed lighting.

• Visual supports: planners, timetables, social stories.

• Routines & structure: predictable schedules reduce anxiety.

• Self-regulation strategies: mindfulness apps, breathing techniques, safe spaces.

• Record-keeping: Keep a diary of strengths, challenges, and triggers — useful for the assessment.

6.  Helplines & Resources

• National Autistic Society Helpline: 0808 800 4104

• Samaritans: 116 123 (if in distress or crisis)

• Scope Helpline: 0808 800 3333 (disability advice)

• SENDIASS (Special Educational Needs & Disabilities Information Advice & Support Service): Local authority service for families navigating school/education support.

• Mind / YoungMinds: Mental health support.

Key message: In the UK, you don’t need a diagnosis to access most support — schools, workplaces, local authorities, and charities must support based on need.